Help with our ADHD research

This survey is led by the National Centre for Mental Health (NCMH). NCMH is a Welsh Government funded Research Centre, led by Cardiff, Swansea and Bangor Universities. It is being funded by Health and Care Research Wales, Welsh Government.

The Director of the National Centre for Mental Health is Professor Ian Jones.

You will have the opportunity to join the study once you have read through and understood the information.

We hope that learning more about neurodevelopmental and mental health difficulties will lead to new ways of diagnosing, treating or even preventing neurodevelopmental problems and mental illness.  However, these remain long-term aims and you will not benefit directly from taking part in this study.

Only the study team will have access to your data and only they will contact you directly.

All information collected during the course of the research will be kept strictly confidential. There are strict laws that safeguard your privacy at every stage. In accordance with the General Data Protection Regulation (GDPR) and the Data Protection Act, you and your child’s personal information will be kept confidential by assigning a unique study code to the data.

Your name and identifying information about you or your child will not be passed on to anyone.

When you agree to take part and sign up, you will be asked to provide contact details and some other information about you and your child such as your age and ethnic group. You will also be asked to answer some questions about your child’s lifestyle, general health and mental health.

First, you need to join the study. This involves reading this information and then consenting below.  This should take about five minutes. Take as much time as you need to decide whether you wish to take part.

Once you have joined, you will be asked some questions. This should take about 15-20 minutes to finish.

We know that we get the best data if you are able to complete these questions in one go, but if for some reason this isn’t possible then you can come back to the website later because you can save your answers once you have finished a set of questions.

We will also contact you every 6-12 months, to keep in touch and to ask you more questions about your child’s lifestyle, general health and mental health. We might ask you for information that you haven’t given before. Sometimes we will ask you the same questions as before so that we can see how things have changed.

As well as this regular contact, the study team may contact you from time to time, to ask if you would like to take part in new studies.

You may be contacted because you or your child have a specific condition (for example depression), or because of something that you have told us about (for example, your child’s age). These studies may be conducted by other research teams.

We will give you more information about these studies including why the research is being carried out, what you might be asked to do and how to sign up. It is up to you to decide whether you want to take part in these new studies.

You do not have to take part in this study.

If you do decide to take part you are still free to withdraw at any time without giving a reason.

If you decide to withdraw from this study, all details you have provided will be destroyed. These will not be used further in the research.

This is a long term study that will allow us to learn a lot about the causes and triggers of mental health and neurodevelopmental problems. The information you provide will be stored for use on a long term basis (at least 15 years).

You will not have any claim to any future commercial use of results from the study in which your data has been used.

To make the best use of resources we will share data (anonymised to exclude any personal details) with different groups of researchers from the NHS, universities and commercial companies, both within the UK and abroad. However, we would stress that those organizations will never obtain access to personal/ identifying information (for example, your name, address, date of birth).

Ethical approval has been obtained from the National Research Ethics Service and NHS (Research and Development) permission has also been obtained.

If you have further questions about the study please contact the study team:

National Centre for Mental Health

Cardiff University

Hadyn Ellis Building,

Maindy Road,

Cathays,

Cardiff

CF24 4HQ

029 20688401

info@ncmh.info

Yes, you can contact Dr Vanessa Davies on 029 2068 8340 or at daviesvj@cardiff.ac.uk.

You can also write to her at:

Dr Vanessa Davies
Institute Manager
Neuroscience and Mental Health Research Institute
3rd Floor, Hadyn Ellis Building
Maindy Road
Cardiff
CF24 4HQ