Are you a parent of a child who has a rare genetic condition that affects their neurodevelopment? Or a voluntary support worker or health professional who supports and cares for this group of children? If yes, we would love to hear from you!
Cerebra’s five-minute survey will gather information about services available to children with genetic diagnoses which are linked to their neurodevelopmental conditions, such as Intellectual Disability, Autism, ADHD, behavioural problems, motor conditions and social communication problems.
Additionally, you can also express your interest to take part in one of their focus groups in which you can tell Cerebra about your experiences of, and thoughts about current mental health services and information.
If you’re interested in taking part, complete their survey online.
The focus groups will be held in September and October in Cardiff, Birmingham and Manchester.
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